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Batten Disease Information Page - http://www.ninds.nih.gov/disorders/batten/batten.htm
Information sheet compiled by NINDS, the National Institute of Neurological Disorders and Stroke. |
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Batten Disease Support and Research Association - http://www.bdsra.org/
BDSRA goals, support groups, local chapters, and resources for parents and families of Batten Disease patients. |
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NCL Resource: A Gateway For Batten Disease - http://www.ucl.ac.uk/ncl/
Information for families and professionals interested in, or affected by, this disease or neuronal ceroid lipofuscinosis (NCLs). Includes what it is, genetics, research, treatment, and family support. |
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Batten Disease - http://en.wikipedia.org/wiki/Batten_disease
Wikipedia article explains what it is, symptoms, history, inheritance factors, diagnosis, and treatment. Includes links to additional information. |
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The Luke and Rachel Batten Foundation - http://lrbf.org
Created to engage in education and medical research toward diagnosis, treatment and/or cure of Juvenile neuronal ceroid lipofuscinosis (Batten disease) and to assist persons with the disease. |