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Stanford Self-Management Programs - http://patienteducation.stanford.edu/programs/
Center develops, evaluates, and disseminates community-based, peer-led, programs for people with all kinds of chronic diseases. Part of School of Medicine, Stanford University, California. |
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Next steps after your diagnosis: finding information and support - http://www.ahrq.gov/consumer/diaginfo.htm
Consumer health information for people with a disease or chronic condition on how to obtain reliable treatment information by the Agency for Healthcare Research and Quality (USA). |
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Chronic Illness - http://chi.sagepub.com/
Journal providing a forum in which researchers from a wide range of disciplines, clinicians, policy makers, and people living with chronic illness come together to clarify the common principles underlying the experience and management of chronic illness. Has current and past issues. |
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Patient Self-Management - Chronic Disease Care - http://www.chcf.org/topics/chronicdisease/index.cfm?subtopic=CL613
Overview of research and publications showing evidence patient self-management interventions lead to improved health status, increased patient satisfaction and reductions in hospital and emergency room costs, listed by the Californian Health Care Foundation. |
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Chronic Disease: Prevention and Management - http://www.cdmcalgary.ca
Calgary Health Region to host its second international conference from October 29 to November 1, 2007. Registration opens October 2006. |
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Report of the Working Group on Long-Term Care - http://www.dol.gov/ebsa/publications/report2.htm
US Department of Labor, Advisory Council Report to recommend policy changes and education on broad scope of findings. |
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Palliative Care Council of South Australia - http://www.pallcare.asn.au/
Resources to comfort, relieve pain and distress for people who are dying, and to support parents, families and friends in approaching death and healing grief. |
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Improving Chronic Illness Care - http://www.improvingchroniccare.org/
Research and resources, including a model to promote interaction between patient and care givers. Essential elements are the community, self-management support, decision support and clinical information systems. |
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Chronic Disease Management - http://www.healthservices.gov.bc.ca/cdm/
British Columbia resources for physicians, patients and researchers. Includes success stories, self-management program, reports, research and Chronic Care Model. |
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Coping with Chronic Illness - http://www.alpineguild.com/COPING%20WITH%20CHRONIC%20ILLNESS.html
An academic paper discusses illness in terms of stages, with a description of each in terms of its relevance to patients. |
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Chronic Illness Alliance Inc. - http://www.chronicillness.org.au/
A representative body for Australian organizations. Promotes details of campaigns and activities, and offers news, articles and information. |
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Health Issues Unmasked - http://healthissuesunmasked.wordpress.com
A weblog dedicated to exploring the issues behind the diagnoses, the statistics, and behind the headlines on chronic illness, health policy, and complementary and alternative medicine. By a journalist, Jacqueline L. Jones. |
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Managing Long Term Conditions (Chronic Disease Management) - http://www.natpact.nhs.uk/cms/2.php
A National Primary and Care Trust Development Funds program aimed to produce personalized care plans involving all medical and associated disciplines. No longer updated, it still contains valuable information for health care professionals. |
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Poem, Pain Management, Chronic Illness - http://www.lehman.cuny.edu/faculty/jfleitas/bandaides/pain.html
Poem about coping with pain using relaxation and imagery. |
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Health Action Network - http://www.procovery.com
A volunteer non-profit organization helping to rehabilitate people with chronic mental or physical illness into the community. Includes details of training and resources. |
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Biotoxin Illness - http://www.biotoxin.info
Ritchie Shoemaker, MD and his research team share new peer-reviewed medical research and clinical treatment protocols along with an online screening test for biotoxin illnesses such as CFIDS, Fibro and Lyme. |
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Living with Long Term Illness - http://www.xs4all.nl/~nvwagen/english/
Tips and ideas on dealing with a chronic condition in daily life. Personal site. |
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Living with Chronic Illness - http://aces_autoimmune.tripod.com/copingb.htm
Personal advice on making adjustments and maintaining hope. |
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Chronic Disease Management - http://www.calgaryhealthregion.ca/cdm/
Model based on cooperation between providers to improve patient health and outcome. The Calgary Health Region also advises on regional strategy, community care coordinators, and patient class details. |
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A Day in a Life with Chronic Illness - http://members.shaw.ca/zonaszone/illness/life.html
A personal account of daily events aims to promote better understanding. |
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Living with Chronic Illness and Disease - http://www.chroniclife.com
Personal perspective on living with chronic disease. Articles cover getting through each day, relaxations, tips, work, stories. |
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Chronic Illness Tips - http://showcase.netins.net/web/fmd/chronic/
A personal account of strategies for daily living. |
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Chronic Illness: Acceptance Is the First Step Toward Healing - http://www.mult-sclerosis.org/news/Oct1999/AcceptingChronicIllness.html
Short description of the day to day acceptance process. |
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Coping with Chronic Illness - http://www.fathersnetwork.org/647.html?page=647&SESSION=ab227735c199fab81f0a5e757533e8d4&s=0
The Fathers Network on how to deal with physical, emotional and spiritual aspects. Applies to anyone with a longterm disease. |
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Learning to Live with a Chronic Condition - https://www.mylifepath.com/producer/documentlibrary/MR15300.pdf?sec=medsup&pg=help
Patient advice on communication with the health team, deciding on a treatment plan, and minimizing costs. From the Lifepath Information Series. |
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Preventing Chronic Disease: Public Health Research, Practice and Policy - http://www.cdc.gov/pcd/
A peer-reviewed Journal by the National Center for Chronic Disease Prevention and Health Promotion in the United States. Contains essays, original research, special topics, case studies. Also available as PDF. |
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Diet, Nutrition and the Prevention of Chronic Diseases - http://www.who.int/hpr/NPH/docs/who_fao_expert_report.pdf
Combined World Health Organization and Food and Agriculture Organization expert report on prevention of obesity, diabetes, cardiovascular diseases, cancer, dental diseases and osteoporosis. |
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Chronic Disease Prevention - http://www.cdc.gov/nccdphp/overview.htm
Overview by National Center (USA) offers statistics, state programs, risk surveillance and risk factors per state. |
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It's Your Life - http://www.stormpages.com/sbhagwat
E-book on chronic disease management available for free online reading or download. |
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Coping with Chronic Illness - http://www.nlm.nih.gov/medlineplus/copingwithchronicillness.html
Offers links to patient information and publications by the National Institutes of Health. |
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Chronic Disease Prevention NOW! - http://www.cdp-now.blogspot.com/
A weblog to reinforce that chronic diseases represent a serious personal and social risk and that their prevention should be on top of everybody's mind. It also explores different prevention solutions to help those who want to take action. |
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Chronic Conditions - http://www.seniornet.org/php/default.php?ClassOrgID=5337&PageID=5541
Advice on managing the health team, staying as healthy as possible, trying complementary therapies, maintaining a sense of humor, working at being optimistic. |
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Illness, Disability and Social Inclusion - http://www.eurofound.eu.int/publications/files/EF0335EN.pdf
Evaluates policies on education, social security, employment, anti-discrimination, and independence. From the European Foundation for the Improvement of Living and Working Conditions. |