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American Heart Association - http://www.americanheart.org/presenter.jhtml?identifier=1477
The AHA website is a simple introduction to the concept of congenital heart disease, with layperson explanations of the various conditions, tests for diagnosis and treatment options. |
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Congenital Heart Disease Information and Resources - http://www.tchin.org
Interactive forums, Internet links, and peer-reviewed informational materials for families, adults with CHD, and health professionals. |
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Adult Congenital Heart Association - http://www.achaheart.org/
Information, resources and support for adults with congenital heart disease. |
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Grown Up Congenital Heart Patients Association (GUCH) - http://www.guch.org.uk
Provides support and advice to adults and teenagers born with CAD. Offers information sheets on topics such as pregnancy, insurance and careers, a message board and quarterly newsletter. |
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MedicineNet: Congenital Heart Disease - http://www.medicinenet.com/congenital_heart_disease/article.htm
Detailed look at the causes, symptoms, types, and treatments. |
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CongenitalHeartDefects.com - http://www.congenitalheartdefects.com
Information, resources and support for families and individuals dealing with congenital heart defects. Definitions of CHDs and medical terms, list of support groups and hospitals. |
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CHD Awareness Day - http://www.tchin.org/aware.htm
The Children's Health Information Network has brought global attention to the dreaded problem of Congenital Heart Defects by a co-ordinated effort from parents and families of CHD victims. |
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Miami Children's Hospital - http://www.pediatricheartsurgery.com
Department of Cardiovascular Surgery provides a list of surgeries performed along with actual pictures and a lot of information about each. A form on-site to ask questions or give comments. |
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Resources from California State University - http://www.csun.edu/~hcmth011/heart/
Very list of congenital heart diseases with links to sites dealing with that particular disease. Information to help parents and provide support. |
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HLHS Information - http://hlhsinfo.homestead.com/
Treatment options for newborns with Hypoplastic Left Heart Syndrome. Includes questions to ask the hospital, surgeon, and insurance company. |
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International Society for Adult Congenital Cardiac Disease - http://www.isaccd.org/
The site offers resources for doctors and other health-care professionals in the field of ACHD and for ACHD patients. Visitors can search for ISACCD members. |
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Feeding Your Infant With Congenital Heart Disease - http://www.americanheart.org/presenter.jhtml?identifier=4885
American Heart Association gives details on baby's growth, how to feed your baby, feeding tips, breastfeeding, formula feeding, tube feeding, starting solid foods, asking for help, heart medication and feeding and looking ahead. |
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Persistent Pulmonary Hypertension of the Newborn - http://neonatal.peds.washington.edu/NICU-WEB/pphn.stm
A definition along with look at the diagnosis, treatment and the prognosis, from the University of Washington Academic Medical Center. |
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Heart Defects: Truncus Arteriosus Type 1 - http://www.childrenheartinstitute.org/educate/defects/truncus1.htm
Information, diagram, symptoms and medical treatment, from the Children's Heart Institute. |
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Congenital Heart Diseases Their Study and Treatment - http://www.redtail.net/owc
A most complete manual, text and graphics by Oliver W. Caminos M.D. (1999) |
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Heart Disease Online - http://www.heartdiseaseonline.com
A collection of articles on the different kinds of congenital heart defects, including their treatment by surgery, written in simple, non-technical language. |
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Coping with Congenital Heart Disease in Your Baby - http://www.aafp.org/afp/990401ap/990401d.html
Article with some useful information, published by The American Academy of Family Physicians. |
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Prenatal Diagnosis of Heart Problems - http://www.fetalcardiology.co.uk
UK site on the diagnosis of defects in the unborn child, prior to birth. Details timing of scans, high risk groups, diagrams of cardiac conditions, and includes support groups. |
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Ventricular Septal Defect - http://heartdisease.about.com/library/weekly/aa020898.htm
VSD is one of the commonest congenital heart defects, where there's a hole in the wall between the two lower chambers of the heart. An article from About.com with Richard N. Fogoros. |
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Our Little Braveheart - http://members.tripod.com/stephandjake-ivil/braveheart/
Jake was born with Tetralogy of Fallot. This is his story along with some pictures. |
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CHD Support Graphics - http://heartdisease.about.com/chdgraphics.htm
A collection of banners, buttons, dividers and even e-cards to spread awareness about birth defects of the heart. |
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About.com - http://heartdisease.about.com/blchd.htm
Information about congenital heart defects, and February 14th being recognized as a day for hearts. |
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The Charlie Ramsey Research Fund - http://crrf.org.uk
Set up to raise money for research for complex congenital heart defects. Read Charlie's story, fund raising details, and new. |
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Fontan Operation - http://www.fontanoperation.com/fontan.htm
Devoted to explaining this procedure, used to treat complex birth defects of the heart like hypoplastic right and left heart syndrome and single ventricle. |
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Hearts Of Hope - http://www.heartsofhope.iinet.net.au/
Stories of children born with a very serious heart defect known as hypoplastic left heart syndrome (HLHS). Help in finding relevant information and links, especially in Australia. |